I have been living with RRP for the last 10 years and it isn't fun.
The RRP ISA (Information, Support and Advocacy) Center website has a lot of information on the disease as well as an online forum where patients, family and practitioners can discuss the disease.
Posted on March 13 at 5:20 p.m. (Suggest removal)
My sympathy goes out to Ian and Ms. Bennet.
I have been living with RRP for the last 10 years and it isn't fun.
The RRP ISA (Information, Support and Advocacy) Center website has a lot of information on the disease as well as an online forum where patients, family and practitioners can discuss the disease.
http://www.rrpwebsite.org
The RRP Foundation is also a great place to learn more and find support.
http://www.rrpf.org
They also maintain a Yahoo group:
http://health.groups.yahoo.com/group/rrp...
Good Luck,
-- Ben
On Recurrent throat growths require repeated surgeries