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Golf tournament to help keep up hope for Hannah Sames

Hannah Sames is shown in the kitchen of her home in this family photo taken Thursday.
Hannah Sames is shown in the kitchen of her home in this family photo taken Thursday.
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Spring brings the promise of good cycling weather and Hannah Sames is eager to get outside on her bike. With the warmer days also comes hope that a clinical trial will soon begin that will help stop the progression of giant axonal neuropathy (GAN), a rare genetic disorder the 10-year-old girl was diagnosed with in March 2008. GAN is slowly taking away the use of Hannah’s limbs. It’s a disease that also can affect sight, ...


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