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Sister of billionaire investor Buffett offers $450,000 in fight against rare disease

Hannah Sames, 8, of Rexford, is helped off the school bus after her first day of school by her mother, Lori, on Wednesday.
Hannah Sames, 8, of Rexford, is helped off the school bus after her first day of school by her mother, Lori, on Wednesday.
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On the first day of school, Hannah Sames had a bit more gear to lug onto the bus than most third-graders. The 8-year-old, who four years ago was diagnosed with giant axonal neuropathy (GAN), wears leg braces and gets around with the help of a walker. “It’s getting harder and harder for her to get around, but she doesn’t complain,” said Hannah’s father, Matt. GAN is a rare genetic disorder that slowly diminishes the ability ...

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nancyr
September 6, 2012
1:14 p.m.

[ Flag Post ]

I have followed this story from the start and the one important person that should be mentioned is the women who reached out to Doris Buffett with her original thought to help Hannah and that is Ruth Shopmyer. Without her large heart to want to help a child she did not know, this additional money and the original money would not have been given to the fund. There was a women that should be mentioned in each and every article because without her, Doris would not have known about Hannah. She seems to be forgotten, not that she would think about it, but I feel that without her all this would not have happened. We should all be proud, I AM, of Ruth also and not enough praise has been given to her.

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